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The dynamics of change: Cancer patients' preferences for information, involvement and support
Author(s): Butow PN, Maclean M, Dunn SM, Tattersall MHN, Boyer MJ
Source: ANNALS OF ONCOLOGY    Volume: 8    Issue: 9    Pages: 857-863    Published: SEP 1997  
Times Cited: 157     References: 34     
Abstract: Background. While the importance of providing individualised communication to cancer patients is now well recognised, little is known about the stability and validity of patients' expressed preferences for information and involvement in decision-making. This study explored the stability and possible predictors of such preferences over time.

Patients and methods. Cancer patients seeing two Medical Oncologists in an out-patient clinic at an Australian teaching hospital completed a questionnaire battery before and directly after one consultation, and before their next consultation. Eighty consecutive patients with heterogeneous cancers participated in the study. Preferences for general and specific information, involvement and support were elicited at each assessment. Locus of control and patient familiarity with the clinic were measured before the first consultation. Patient satisfaction with the consultation was assessed directly after the consultation. Demographic and disease data were recorded for each patient.

Results. General preferences for information and involvement were relatively stable, at least in the short term; however there was considerable variability in preferences for specific topics of information. Patients whose condition had recently worsened were more likely to want progressively less involvement in decision-making. Gender, the doctor seen and religion were also predictive of patient preferences.

Conclusions: Situational factors, such as change in disease status, may alter a patient's preferences for information and involvement. If we wish to match the provision of information and support to the expressed needs of patients, we must ask patients at each consultation what those needs are.

Document Type: Article
Language: English
Reprint Address: Butow, PN (reprint author), UNIV SYDNEY, DEPT MED, MED PSYCHOL UNIT, SYDNEY, NSW 2006 AUSTRALIA
Addresses:
1. UNIV SYDNEY, DEPT CANC MED, SYDNEY, NSW 2006 AUSTRALIA
2. ROYAL PRINCE ALFRED HOSP, DEPT MED ONCOL, CAMPERDOWN, NSW 2050 AUSTRALIA
Publisher: KLUWER ACADEMIC PUBL, SPUIBOULEVARD 50, PO BOX 17, 3300 AA DORDRECHT, NETHERLANDS
Subject Category: Oncology
IDS Number: YD478
ISSN: 0923-7534
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